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2getherTECH​
http://2gethertech.com
2getherTECH's assistive technology provides a safe, cost effective alternative to supporting individuals in their own homes.
A Day in Your Shoes
https://adayinourshoes.com
Answering Your IEP and 504 Questions - Hundreds of posts. Thousands of IEP Goals and IEP accommodations. Tons of advice and tips after attending 100s of IEP meetings.
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ABLE National Resource Center (ANRC)
https://www.ablenrc.org
The ABLE National Resource Center (ABLE NRC) is the leading, comprehensive source of objective, independent information about federal-and state-related ABLE programs and activities, including guidance on tax-advantaged ABLE savings accounts.
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Adult Disability Starter Kit (for Social Security)
https://www.ssa.gov/disability/disability_starter_kits_adult_eng.htm
Information and facts about registration for Social Security as an adult.
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After Abuse - Resources for Missourians with Disabilities
https://www.afterabusemoguide.com
This website was created to share materials that inform and empower people with disabilities. The site is designed to support abuse survivors throughout the reporting and investigation process.
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Alzheimer's Association
https://www.alz.org
The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.
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American Association of Intellectual & Developmental Disabilities (AAIDD)
Founded in 1876, AAIDD, and formerly known as AAMR, AAIDD is the oldest and largest interdisciplinary organization of professionals (and others) concerned about developmental disabilities.
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As You Are
https://asyouare.com
As You Are is a virtual clinic focused on reducing wait times for an autism diagnosis by providing evaluations through telehealth appointments. Families across the US are waiting years to get a diagnosis but As You Are physicians can get families answers in weeks.
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Association of People Supporting Employment First
The Association of People Supporting Employment First (APSE) is the only national membership organization focused exclusively on Employment First to facilitate the full inclusion of people with disabilities in the workplace and community.
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Autism Clinic - Children's Mercy Kansas City
https://www.childrensmercy.org/departments-and-clinics/developmental-and-behavioral-health/autism-clinic
Children’s Mercy is one of six Autism Centers designated by the state of Missouri. We provide comprehensive diagnostic services for children whose families suspect they may have autism or a related disorder.
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Autism Society of America (ASA)
ASA is a national association for people with autism. The site connects individuals with autism and their families to reliable information and referral resources.
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Autism Support Now
https://www.autismsupportnow.com
Our goal is to enhance the lives of children with autism spectrum disorders (ASD) and their families through a range of specialized services, including therapy and behavioral interventions. We offer personalized support to help each child thrive and to empower families throughout their autism journey.
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Brain Injury Association of Missouri
The Mission of the Brain Injury Association of Missouri is to reduce the incidence of brain injury; to promote acceptance, independence and productivity of persons with brain injury; and to support their families, caregivers and the community.
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Benefits Finder
https://www.benefits.gov/benefit-finder
Benefits Finder can help find benefits you may be eligible to receive and where to apply.
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Caring.com
"Caring.com exists to help family caregivers like you make better decisions, save time and money and feel less alone."
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Center for Transition to Adult Healthcare for Youth with Disabilities
https://movingtoadulthealthcare.org/
The Center for Transition to Adult Health Care for Youth with Disabilities is a national health care transition resource center. The goal of the center is to empower youth and young adults with intellectual and developmental disabilities (ID/DD) ages 12-26 to direct their own transition from pediatric to adult care with no reduction in quality of care and no gaps in service.
Center for Parent Information and Resources (CPIR)
https://www.parentcenterhub.org
"Your central 'Hub' of information and products created for the network of Parent Centers serving families of children with disabilities."
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Center for Public Representation (CPR) - Supported Decision-Making
https://supporteddecisions.org/
Supported Decision-Making (SDM) is an effective alternative to guardianship that is gaining momentum in Massachusetts and nationwide. Supported Decision-Making gives people more independence, more dignity, more freedom
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Cerebral Palsy Group
https://cerebralpalsygroup.org
"Improving outcomes for children with cerebral palsy through research, evidence-based therapy, teaching and technology."
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Cerebral Palsy Guidance
https://www.cerebralpalsyguidance.com/cerebral-palsy
"Cerebral Palsy Guidance was created to provide answers and assistance to parents of children with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance."
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Cerebral Palsy Guide
https://www.cerebralpalsyguide.com
"Cerebral Palsy Guide provides free educational materials, financial resources, and support options for families affected by this condition and other birth injuries."
Charting the LifeCourse Nexus
https://www.lifecoursetools.com
Charting the LifeCourse is designed to be used for your own life, for your family members, or in the work you do. The framework and tools will help you organize your ideas, vision, and goals, as well as problem-solve, navigate, and advocate for supports.
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Child Disability Starter Kit (for Social Security)
https://www.ssa.gov/disability/disability_starter_kits_child_eng.htm
Information and facts about registration for Social Security for a child.
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Children's Health Insurance Program (CHIP)
https://www.insurekidsnow.gov
Millions of children and teens qualify for free or low-cost health and dental coverage through Medicaid & the Children's Health Insurance Program (CHIP).
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CouponFollow - Financial Resources and Discounts for Students with Disabilities
https://couponfollow.com/research/financial-resources-for-students-with-disabilities
We realize that college can be both an extremely fun and stressful time of life for anyone, and for those who have disabilities it can add a bit of additional financial and mental stress to the equation. This is precisely why we carefully crafted this helpful guide to various financial resources, discounts and savings opportunities, and travel tips for students with disabilities.
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Courageous Parents Network (CPN)
https://courageousparentsnetwork.org
Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians.
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Disability Resources 101 - Benefits Videos
https://mo.db101.org/video/benefits
These videos will help you learn more about benefits, and see how work can help people get to their best life.
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DW Auto & Home Mobility
https://www.dwauto.com
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Elera
https://elara.com/locations/kirksville-mo
Personal Care Services in Kirksville
If you or a loved one needs help with activities of daily living, home safety or personal care, our Kirskville personal care services team can provide a specialized program of care to make life easier.
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Epilepsy Foundation
This web site provides information about epilepsy and its effects on people's lives.
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Family Voices
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.
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Global Genes: An Alliance In Rare Disease
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.
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Got Transition
Got Transition helps youth and young adults move from pediatric to adult health care.
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Governor's Council on Disability - Missouri
The Governor´s Council on Disability (GCD) promotes full participation and inclusion of the nearly 1 million Missourians with disabilities in all aspects of community life by educating citizens, businesses, schools, universities and others of their rights and responsibilities under the Americans with Disabilities Act.
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Hello It's Me
Hello, It’s Me® strives to reduce feelings of isolation and loneliness in people with intellectual and developmental disabilities.
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Hypoxic-Ischemic Encephalophy (HIE) Help Center
The HIE Help Center seeks to support and inform the families and loved ones of children with disabilities stemming from hypoxic-ischemic encephalopathy (HIE)
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ICI ThinkWork! Institute for Community Inclusion, UMASS Boston
ThinkWork is the hub for an array of programs related to employment for people with IDD at the Institute for Community Inclusion at the University of Massachusetts Boston. Browse the different programs below.
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IntellectAbility - Replacing Risk with Health and Wellness
Comprehensive suite of risk resolution and learning tools for professional supporters: tools that empower, educate and inform those responsible for protecting, maintaining and restoring health, wholeness and a good quality of life for people with I/DD.
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Intelligent.com
https://www.intelligent.com/deaf-and-hard-of-hearing-student-online-college-guide
This guide is created to help deaf and hard of hearing students learn about online accommodations colleges offer to comply with the American Disabilities Act, popular listening devices and applications, and scholarships. It also provides a list of the 5 best colleges for students with hearing disabilities as well as additional helpful resources.
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InternetAdvisor - Internet Access For Kids: A Guide for Parents
https://www.internetadvisor.com/internet-access-for-kids-parents-guide
Blog post from internetadvisor.com about parent information for ensuring safe internet usage by children.
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J Flowers Health
https://jflowershealth.com/8-dimensions-of-wellness
J Flowers Health provides information which is curated and includes videos that give diverse perspectives on the 8 dimensions of wellness.
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JAN - Job Accommodation Network
https://askjan.org
The Job Accommodation Network (JAN) is a source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
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Knights of Columbus Developmental Center
https://www.ssmhealth.com/locations/location-details/knights-of-columbus-development-center
The Knights of Columbus Developmental Center at SSM Health Cardinal Glennon Children’s Hospital serves children with special needs in the St. Louis region. Our developmental pediatrics team includes neurologists, psychiatrists, psychologists, nurses, speech-language pathologists, occupational therapists, a family resource specialist and education coordinator, social worker and an active research team.
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Mercy Kids Autism Center
https://www.mercy.net/practice/mercy-kids-autism-center
Mercy Kids Autism Center provides a child-and-family-centered approach to ASD. Our services include diagnosis, medical and psychological care, family navigation services and treatment programs. We develop a tailor-made care plan for your child in partnership with you.
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Midwest Special Needs Trust
https://www.midwestspecialneedstrust.org
Missouri Family Trust was established as a result of advocacy by parents and professionals who realized that many obstacles hinder planning for the financial future of individuals with disabilities.
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MO-ABLE
STABLE Accounts allow individuals with disabilities to save and invest money without losing eligibility for certain public benefits programs, like Medicaid or SSI. Earnings in your STABLE Account are not subject to federal income tax, so long as you spend them on “Qualified Disability Expenses.”
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Missouri Assistive Technology
Retailor of assistive technology to increase access to assistive technology for Missourians with all types of disabilities, of all ages.
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Missouri Assistive Technology's Swap 'n Shop
https://at.mo.gov/recycle-reuse/swap-n-shop.html
Missouri AT’s Swap ‘n Shop Program is like a “classified ads” for assistive technology that matches “buyers” up with “sellers.” Missouri Assistive Technology provides a listing of equipment that consumers would like to sell, trade, donate or buy.
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Missouri Association of County Developmental Disabilities Services (MACDDS)
MACDDS is a statewide association of county boards for the developmentally disabled dedicated to local control and provision of supports and services.
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Missouri Department of Developmental Disabilities
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Missouri Department of Elementary & Secondary Education
The Missouri DESE site provides information concerning Missouri's public schools and special education services.
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Missouri Department of Mental Health
The Missouri Department of Mental Health operates the Divisions of Developmental Disabilities, Comprehensive Psychiatric Services, and Alcohol and Drug Abuse.
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Missouri Developmental Disabilities Council (MODDC)
The Missouri Department of Mental Health, Division of Developmental Disabilities is the administering agency for P.L. 106-402, the federal law which mandates the Missouri Developmental Disabilities Council.
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Missouri Disability Empowerment (MoDE) Foundation
We are parents, providers, family members, engaged citizens, and friends of varying abilities with a focus on disability issues that really matter! This includes YOU!
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Missouri Interagency Council on Homelessness
https://www.endhomelessnessmo.org
The Missouri Interagency Council on Homelessness (MICH) will lead Missouri's efforts to prevent and end homelessness.
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Missouri Parents Act - MPACT
https://www.missouriparentsact.org
Missouri Parents Act (MPACT) is Missouri’s Parent Training and Information Center, funded in part by the U.S. Department of Education and the State of Missouri. Our mission is to empower families to advocate for themselves so that children with special educational needs can reach their full potential in education and life – through support, training, and education.
Missouri People First
https://www.missouripeoplefirst.org
People First of Missouri is a self-advocacy organization that was formed by, is run by, and exists for people with developmental disabilities in the state of Missouri.
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Missouri Protection and Advocacy Services (Mo P&A)
Missouri Protection and Advocacy Services (Mo P&A) is designated by the Missouri Governor as the federally mandated system to protect the legal rights of persons with disabilities through legal-based advocacy.
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Missouri State University Bear POWER (Promoting Opportunities for Work, Education and Resilience)
https://www.missouristate.edu/bearpower/default.htm
"Bear POWER is a two and a half year (five semester) inclusive college program for students with intellectual and developmental disabilities at Missouri Sate University. The program was create to offer a post-secondary opportunity for students transitioning out of high school. Bear POWER is an approved Comprehensive Transition Program (CTP) by the Unitec States Department of Education and is listed on thinkcollege.net."
Resources
Missouri State University - West Plains ASCEND Program (Autism Support Can Empower New Directions)
https://wp.missouristate.edu/Ascend/default.htm
To encourage and foster self-confidence, self-advocacy, and growing independence in college students with autism; To understand students’ strengths and weaknesses, and help them learn and apply skills and strategies to successfully navigate the communication, planning and problem-solving demands of college life.
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Missouri Supported Decision-Making
The Supported Decision-Making Consortium is led by Missouri's DD Network and its three partners: UMKC-IHD, the DD Council, and Mo P&A.
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MyVision.org
"We offer medically reviewed articles about all things related to your vision and eye health. Learn all you need to know about eye conditions, glasses & contacts, eye surgery, and more."
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National Alliance on Mental Illness
NAMI Missouri is a 501(c)(3) tax exempt organization, and was founded in 1985 to provide education, support and advocacy on behalf of people with serious mental illness and their families regardless of race, religion or national origin.​
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National Council on Disability
NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities.
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National Task Group On Intellectual Disabilities and Dementia Practices
The ‘NTG’ is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease.
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Night Owl Support Systems, LLC (NOSS)
Night Owl Support Systems, LLC (NOSS) is a Remote Supports company, which is a unique a way to support people in their own homes.
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Neurodiversity in the Workplace
We connect highly qualified neurodivergent talent to career opportunities with inclusive employers. As a business consultancy, we design, implement, and sustain neurodiversity hiring programs with partner organizations seeking a more diverse, equitable, and innovative workforce.
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OpenNotes
OpenNotes is the international movement promoting and studying transparent communication in healthcare. We help patients and clinicians share meaningful notes in medical records. We call these open notes.
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ReachAble Technology
Our mission: to develop and provide assistive technology that fosters independence and improves daily life.
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Ready
Ready is a National public service campaign designed to educate and empower the American people to prepare for, respond to and mitigate emergencies, including natural and man-made disasters. The goal of the campaign is to promote preparedness through public involvement.
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ResumeBuilder.com - Resume and Employment Guide for People with Disabilities
https://www.resumebuilder.com/comprehensive-resume-and-career-guide-for-people-with-disabilities
A Quick and Easy Way to Create Your Professional Resume. 30+ Professional Resume Templates Choose from over thirty modern and professional templates. All of which can be customized to your liking. Fast and Easy to Use Our resume builder lets you easily and quickly create a resume using our resume wizard.
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SABE USA
https://www.sabeusa.org/meet-sabe
Self Advocates Becoming Empowered (SABE) is the United State’s national self-advocacy organization.
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Show Me College
Show Me College is a Central Resource for Missourians (and others) to explore higher education options for students with disabilities after high school.
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Smart Steps Mobile App
Smart Steps helps college students figure out what to do in stressful situations. It enables campuses to provide that extra layer of support at a time when young adults experience increased independence and new pressures.
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StationMD
https://www.stationmd.com
StationMD offers telemedicine solutions, with secure video-conferencing, for vulnerable populations including people with developmental disabilities. Their service allows patients the ability to receive quality care from their own home or chosen location without having to enter a hospital or other medical setting.
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STRIVE - (Self-Determined Transition Readiness Through Individual Vocational Experiences
https://thompsoncenter.missouri.edu/strive
STRIVE is an innovative post-secondary education and independence program at the University of Missouri tailored specifically for 18-to-30-year-olds with autism or similar diagnoses.
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The Arc
The Arc is a National Association of and for people with developmental disabilities and their families.
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The Arc of Missouri
https://thearc.org/chapter/the-arc-of-missouri
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The National Organization for Rare Disorders (NORD)
NORD is a unique federation of more than 140 organizations serving people with rare disorders and disabilities.
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The Thompson Center for Autism & Neurodevelopmental Disorders
https://thompsoncenter.missouri.edu
Serving families affected by autism and other neurodevelopmental disorders with expert diagnostics, evidence-based clinical care, groundbreaking research, and compassionate support.
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Triple P - Positive Parenting Program
https://www.triplep.net/glo-en/home
Triple P gives parents simple and practical strategies to help them build strong, healthy relationships, confidently manage their children’s behavior and prevent problems developing.
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United Cerebral Palsy Association (UCP)
UCPA is a national association dedicated to research and information dissemination.
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University of Central Missouri THRIVE Program
https://www.ucmo.edu/current-students/student-services/thrive-program
Through the THRIVE Program, the University of Central Missouri prepares students with disabilities to transition to independent living and find employment that fits their individual goals and abilities.
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University of Missouri-Columbia PAWS (Preparing Adults for Work and Society)​
https://cehd.missouri.edu/special-education/projects-centers/paws
PAWS (Preparing Adults for Work and Society) is an Inclusive Post Secondary option for students with intellectual disabilities.
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University of Missouri-Kansas City Institute for Human Development
The University of Missouri-Kansas City’s Institute for Human Development (UMKC-IHD) is the federally designated University Center for Excellence in Developmental Disabilities (UCEDD) for the state of Missouri. It is a member of the Association of University Centers on Disabilities (AUCD) and one of 67 UCEDDs located in every state and United States territory. As an applied research and training center for human services at UMKC, the IHD reports to the Office of the Provost and serves as a bridge between the university and community.
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University of Missouri Pre-Employment Transition Services (MU Pre-ETS)
https://education.missouri.edu/outreach/pre-employment-transition-services
University of Missouri Pre-Employment Transition Service (Pre-ETS) is an outreach program of the College of Education and Human Development. Specialists offer no-cost pre-employment transition services to Missouri high school students with disabilities, ages 16-21 (or as young as 14 if the need for Pre-ETS is documented in the student’s IEP or 504).
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University of Missouri-St. Louis SUCCEED, SUCCEED+, and LINK Programs
https://www.umsl.edu/education/oipe/index.html
SUCCEED is a two-year residential, non-credit program in which participants receive opportunities for employment and interact regularly with matriculated UMSL students. Through active collaboration with diverse campus and community partners and a holistic approach to student supports, we envision a college experience where our students can live independently, learn in a supportive and inclusive environment, find secure meaningful employment, and be successfully immersed in a rich social climate.
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UNSEEN - Documentary and Resources for Caregivers
"How we're failing family caregivers and why it matters" UNSEEN offers a documentary about the struggles of caregivers and provides resources for caregivers.
Vocational Rehabilitation - Missouri Department of Elementary & Secondary Education
https://dese.mo.gov/adult-learning-rehabilitation-services/vocational-rehabilitation
Do you want to work but have a disability that prevents you from working? We have services and resources that may be able to help you. Whether you are looking for a job, wanting to keep a job, or hoping to move up in a job, VR has options.
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Zocdoc
Zocdoc offers an online service that allows people to find and book in-person or telemedicine appointments for medical or dental care. They also functions as a physician and dentist rating and comparison database.
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